A few weeks ago we started essential oil protocols for our Lyme and co-infection treatment. The LLND we work with said that in order to be able to tell how we respond to the essential oils, she wanted to keep us on the protocol we have been on with antibiotics, and slowly pulse the essential oils so we can see if it causes a herx. That would be an indication that we could further our quest for remission by using the oils, since there are oils that cross the blood-brain barrier more effectively than many antibiotics do.
Within two days we were all herxing like crazy! We could tell immediately that they were going to work well. To avoid putting our bodies into a long-term tailspin/herx, we are taking a medication break this week. We’re detoxing, building good intestinal health with probiotics, and getting extra rest. We cycle our protocols so they begin/end over the weekends. We will see where we are over this coming weekend and decide if we will take one more week off from treatment, or if we will start phase one treatment again – with oils only, no antibiotics.
The oil protocols are not for the faint of heart, but with a good preparation, it is more manageable than the pain we have suffered from Lyme itself. I definitely see an end in sight.
With each passing day I become more and more confident in using the oils for different things that come up. I’m working through a course to eventually become a certified aromatherapist and practitioner – I just love the oils that much.
The last couple weeks have been filled with mental and physical tasks associated with selling our house in New Hampshire (closing was last Thursday). I am relieved to not have to think about the house anymore, and feel a weight has been lifted not having to worry about paying rent here and mortgage there. YAY!
This past Saturday was our bi-monthly massage day for the family, which was especially nice after the stress of last week’s house closing. Sunday was Easter, and we had a lot of relaxing down time, and our Sunday night ritual of going to the beach for sunset was the perfect way to end a nice day.
We are on the next step of the transition from oral antibiotics to essential oils, and so far everyone is doing well. This past Friday was full moon, and we were all herxing in one way or another, so we are glad that we’re still herxing with the oils so we know they are working.
We have some visitors coming from the east coast over the next couple months, and we can’t wait for that. Ivan is also entertaining a job offer from the company he is under contract with, and we are hoping for a successful negotiation. Poppy is going to be finishing up physical therapy in the next couple months, and is continuing to thrive with his unschooling approach to learning. And me? Well, I am working on an online essential oil course that goes very in-depth with how they work medicinally and scientifically.
This morning has been quiet and full of reflection of the past few weeks. A new chapter of our lives is beginning right now, and I can’t wait to see what happens.
Truth be told, we didn’t go here on a Friday, we actually went this past Tuesday. I think as long as we are talking about a true field trip, it qualifies.
We met up with a few other families in our homeschool group and went to Urban Corps. You can read more about the whole program at the link, but in short, it is a charter school where the young adults run the recycling center program while learning life skills and English.
The kids were mainly interested in seeing the recycling equipment, which unfortunately wasn’t up and running for the tour. We supplemented by watching videos on YouTube when we arrived home. Still, we did see some cool stuff, and all the kids were able to bring home a succulent plant from their rooftop garden.
A number of years ago, I went to see the band “The Cure” in concert. It is a fact that has been verified by the ticket stub that I still have, and people that went with me telling me that I was there.
Once we discovered that one of the major components of Lyme Disease is big time brain fog, it became clear why this concert, and many other parts of my life, have been forgotten or buried. Or, the Lyme bacteria simply ate my memories. Kidding. Sort of.
Since I have started treatment, I have had several things pop into my mind that I haven’t thought of in years. Completely random things, like the fact that it was scorching hot the day of my high school graduation. Oh, and I remembered that a group of friends did a surprise birthday party for me on my 16th birthday at a local restaurant in my hometown. I even remember the people that were there. Before treatment… I would have stared through you or asked you what birthday party you were talking about.
Before I started Lyme treatment a few months ago, I had taken over a year to get my body ready so treatment could be as successful as possible. I went gluten free. I learned as much as I could about detox protocols. Went to bed earlier each night. Adopted an attitude of gratitude. Cut back on sugar. I also got my hormones balanced (under the direction of a doctor) and went on methylation support.
My body started to tell me that it was time to treat. I have written posts about it in the past. My headaches were increasing again, with the occasional migraine. I was also having VERY sensitive skin that would burn when it was touched. Also, occasional foot pain (classic Bartonella).
The treatment started out a little rough, and I was on sick dog diet for a few weeks. But, after getting over the worst of that, I have realized that my mind started to come back. Thoughts are clear, and the things I can remember are vivid. Good treatment combined with good detox have been a winning formula for me. (And NO antibiotics!)
I have thought about how I will know that Lyme and co-infections are in remission, since that is a question many ask – “how do you know you are in remission?” For me, I think it is going to be remembering the Cure concert.
When we first moved to San Diego, I met a woman that does different types of massage therapy on chronically ill patients. She does not have a studio, she actually comes to the patient’s home so the patient can relax without having to drive after. Because Ivan was in so much pain in his belly – and has been for years – she started coming every couple weeks. This has helped him so much, and when schedules were too busy during the holidays and he didn’t have his sessions for a couple months, the pain came roaring back.
Yesterday was massage day, and she ended up staying for a few hours and did a craniosacral massage on all of us. It was wonderful!
From the Upledger Institute website:
CST is a gentle, hands-on method of evaluating and enhancing the functioning of a physiological body system called the craniosacral system – comprised of the membranes and cerebrospinal fluid that surround and protect the brain and spinal cord.
Using a soft touch generally no greater than 5 grams, or about the weight of a nickel, practitioners release restrictions in the craniosacral system to improve the functioning of the central nervous system.
By complementing the body’s natural healing processes, CST is increasingly used as a preventive health measure for its ability to bolster resistance to disease, and is effective for a wide range of medical problems associated with pain and dysfunction, including:
I cannot speak for Poppy and Ivan, but I felt so relaxed after my session. Besides feeling relaxed, my normally freezing cold feet were toasty warm. Lisa, the massage therapist, had me focus on pushing warmth toward my feet with every breath as she did the CST technique.
Poppy goes through periods of lots of vocal and physical stims/tics, and he has had them the last few days. After his session, he was so quiet and calm.
I’m looking forward to Lisa’s next visit with us. Everything we do is a step closer to our Lyme being in remission and living in full health, and I feel blessed that we are finding so many things that are helping us achieve this goal.